Saturday, 2 April 2016

Dont Light It Up Blue, research, educate and do something!

As some of you may be aware today is Autism Awareness Day and I have been in a foul mood. SO much so I have been logged out of my Facebook for most of the day, I just can stand to see the sea of 'Light It Up Blue' slogans plastered everywhere. This popped up on my time hop app this morning.
As a Mother of 3 on the spectrum I 100% support raising awareness but did you know the 'Light it up blue' slogan is from the organisation Autism Speaks. For those who aren't aware, on the face of it hey advocate Autism Awareness. But when you do a little digging only 4% of their annual profits fund family support, the rest goes into finding a 'cure' for Autism!!
It's not an illness, or a disease, it's a neurological condition. I am all for therapy, but that's not what Autism Speaks means by a cure. The largest funded project of theirs is to run prenatal testing to rule out Autism, they want all Mothers to be offered the chance to terminate their pregnancy. Autism speaks want Autism to be eradicated in society, in one of their reports they go as far as saying Autism has no place in our society. They are also behind some awful anti-autism videos floating around the internet. Basically, they are n*bheads and they make my blood boil. Sorry, I don't normally swear here but I am 1000000000000% against this crackpot organisation.

After stewing in my own juice all day I decided to do something positive and find something I could do to raise my own genuine piece of Autism Awareness........... and I found it!


Last year over £7000 was raised for  the NAS in the Ben Nevis challenge and this year is the Snowdon Challenge. It costs just £25 to register and they have a suggested fundraising target of £200.
So next week (on pay day) myself and hubby are registering to take part and on Sunday 14th August 2016 we will spend 6  hours climbing up and getting back down Mount Snowdon and hopefully raising lots of money for the National Autistic Society in the process.

If you or anyone you know is affected by Autism, you may understand why Autism Speaks offends me so  much. It's hurtful to think that there is a multimillion pound organisation who think my 3 wonderfully unique children have no place on this earth, and sound have been aborted at birth! Like I said above absolute n*bheads.

If you want to do something positive for Autism check out  The National Autistic Society Website and light it up pink and purple, definitely not blue.

Sorry for the rant
Thanks for reading
Mandy
Sons, Sand & Sauvignon
Keep Calm and Carry On Linking Sunday
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20 comments:

  1. Thankyou for enlightening me
    Eradicate!!!! Shocked when I read this going to look into this much deeper no wonder you are mad xx
    Just keep raising the rainbows and awareness xx

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  2. Thank you so much for this. At 28 I'm waiting for assessment for ASD right now, after a string of mental health diagnoses that never really stuck, and was horrified when my early forays into learning more led me to find out about Autism Speaks and the amount of celebrity endorsement and coverage they get compared to what they 'really' do. The whole Light it Up Blue thing makes me feel physically ill.

    I get social media anxiety really badly when something like this is happening so I tried to post once on IG this morning, saying my bit and contributing constructively, then disappear for a while. I didn't get flamed or anything, but I've noticed some real derision on other (blue) posts in my timeline from people who just can't understand why blue is an anxiety trigger today, or that blue isn't 'officially' autism's colour, it's A$'s colour, or that it doesn't matter if you're intentionally affiliated with that charity or not, spreading more blue across the internet in the name of autism awareness IS going to be offensive to a swathe of people. I've been so torn between wanting to TELL them why, and wanting to keep myself calm, so I've been delighted to see posts like these doing what I couldn't, in the end.

    All of which is a very rambly way of saying thank you. Posts like these have made me feel less alone today and stopped me spiralling and obsessing too far, and I'm sure I'm not the only one. :)

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    1. Update: One particular comment thread on a post WAS really getting to me last night, (arguing about the colour is so stupid, it's the awareness that's important, 'what the f**k is wrong with people we're doing a good thing' etc etc) so I politely explained 'the blue thing'. And got BATTERED. And had an anxiety attack, and didn't sleep, and now I feel like someone's inserted electrical wires under my skin and keeps switching them on every time I think about it. *sighs* I really should know myself better than this by now and stay AWAY from engaging in volatile conversations.

      I just genuinely don't think anyone sees the irony in basically saying, "Yay, autism awareness! Respect for autistic people! But... What do you mean they have a legitimate issue with this one element that I could easily change if I wanted to? LOL who even cares, they're so stupid! Go blue!"

      Once again... thank you. People like you make me feel better about people like them and if I can juuust get through another 24 hours I should be able to breathe properly again! I don't even know you but this post got to me and I kind of want to cry on you and give you a hug tbh. :)

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    2. (You can delete my comments if you want by the way, they're a bit rambly, I just wanted YOU to know that you've been heard and appreciated over here and that your post has really helped one slightly overwrought lass through the day!)

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    3. For your own sake stay away from those types of threads. Let them think what they like you know your reason for not doing it x

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    4. I really should have learned my lesson, haha. I wind up feeling so strongly about something that I end up commenting, but then feel even MORE strongly that I really should have just left it alone because of the anxiety that follows, and THEN I feel like a coward for wanting to run away and hide for a week. Thank you Amanda. :)

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  3. Go you - good luck with the climb!

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  4. Thank you for writing this, i had no idea about 'Autism speaks' although i do have experience of working with autistic children. I'm shocked that the charity is funding research for tests in the womb, it seems ridiculous! I'm so glad you have made me aware of this, its so important!

    #justanotherlinky

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  5. What?! I had no idea such an organisation exists. I'm unsure about how you would actually go about eradicating autism from society even if you wanted to-I read something recently which said that recent research suggests that autism is probably caused by a complicated combination of genes; and surely it's a spectrum anyway, and all of us sit somewhere on that spectrum? I'm not an expert, but this all sounds very odd! #KCACOLS

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    1. They definitely are odd.... some of the reports I have read from them are crazy. They seem to say 1 thing and then another.

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  6. Totally agree with you. Knowing what I do about that organisation, and what autistic people think of them, and I seriously couldn't use that colour in the name of autism at all. And yet I've been challenged for it, called a spoilsport, and been told that I'm spoiling awareness by suggesting others don't use it. And that's by people who have read the articles and who really should understand, which is the saddest bit. On the other hand, I have persuaded many more not to use it and I have to hope that common sense will win out in the end. Key is to spread the key about how bad AS is. :(

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    1. I just don't get the 'spoiling awareness' argument. I posted a pic on IG on the 2nd of a bunch of books on Asperger's and the broader autistic spectrum that I've been finding really helpful, with a caption talking about the day and mentioning some documentaries currently available on catch-up that have been quite insightful - and someone inevitably informed me in the comments that I WASN'T DOING AWARENESS RIGHT BECAUSE THE BOOKS WEREN'T BLUE. That little delete button on IG comments sure is handy sometimes. ;)

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    2. love your attitude Ellie ;)

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  7. Well said as a autisitic person I abid this organisation and find it totally offensive with their ideology with trying to find a cure. All I want to be is accepted for me and my condition and not to see me as a problem that needs to be solved some way X #spectrumSunday

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  8. I completely agree about Autism Speaks. Have A LOT of love for NAS - it was their helpline that first guided us. My own post is about Autism Awareness too (my 3yo son is on the spectrum) but completely from the perpective that we need to stereotype less and accept more #KCACOLS

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  9. It's good to make people aware of this as I'm sure people would support the blue campaign not knowing. That's quite a tough statistic to swallow in terms of what they are actually giving back. Well done for raising it #KCACOLS

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  10. Oh wow. I didn't know anything about this organisation at all. Thanks for letting us know. I will for sure spread the word as it sound awful!! I think it is is amazing that you will be climbing up and down Mount Snowdon! Great cause! Good luck with it!! Thanks so much for sharing this at #KCACOLS. It is great having you for the first time. I hope that you like it. I'm so grateful for all the comments that you have done this week at #KCACOLS I really appreciate so much love!! I would love to have you again on Sunday!! :-) xx

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  11. Gosh, that's so shocking! Thanks for digging a little deeper into this organisation and letting us know.

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  12. I was completely oblivious to this until I saw your post (I read it straight away when you linked) I didn't 'light it up blue' but my husband did. I was planning on throwing myself out of an aeroplane last year, but never went ahead with it...maybe I should? Eeeek! thank you for joining me on #spectrumsunday lovely, hope you pop by again this week xx

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