Wednesday, 16 March 2016

The A to Z of Autism - E is For

When Mr L was diagnosed back in 2007 I didn't have a clue what Autism was or even what it meant, 8 years on and 2 more diagnoses its still a puzzle. I have been contemplating doing a blog series with all the words associated with Autism to help other parents and to maybe be a bit of a reference point. So say hello to the A to Z of Autism. Each week will be a different letter, last week was D is for and I got some fab inclusions from other autism parents. This week is E is for.........

Eye Contact
For some autistic children eye contact is extremely difficult. Out of my 3 ASD children, 2 of them just cannot and will not look you in the eye for any period of time. Mr D is very good with eye contact, although it is very unusal eye contact and is very fleeting. You hear people all the time saying things like " Oh they can't be autistic, they look you in the eye" This just isn't the case, autism is a spectrum condition, which means all of our ASD children are so wonderfully different and all bring something different to the table.

Echolalia
Ann From Rainbows Are too Beautiful suggested this word. Here is an extract from her post on echolalia. 
Nearly 75% of verbal autistic people display some kind of echolalia. It is 'echoing' or repeating or words, sounds, sounds made by someone else. It's there because the child doesn't understand what's being said but thinks a response is appropriate.  It was one of the key 'symptoms' that led to our eldest son's Autistic Spectrum Disorder (ASD) diagnosis, so why on earth am I pleased our second son is now showing signs of echolalia? 
If you click on the highlighted link above it will take you directly to Ann's full post.

The next 4 are all suggestions from Jenny at Cheetahs In My Shoes.
Emotion - theirs and ours as their parents; the highs, lows, frustrations, upsets etc 
Entertainment - because when on form, my small one can be utterly hilarious.
Envy - when the green eyed monster sneaks in and you find yourself envying people who have a 'normal' (whatever that might be) life and can do things without phenomenal amounts of planning, preparation and stress.
Environment - especially that not all children with ASD or Social Communication issues respond well to the same type of environment.

Education/EHCP
This is from Steph over at Stephs Two Girls, a lot of issues and extra meeting that can go unnorticed by others. I agree with this I seem to spend half the school year in and out of meeting about 1 thing or another.  

Do you have anything else you would add for E then just leave me a comment below. Make sure you come back in a fortnight for F is for.....
Mandy
xx

3 comments:

  1. Thanks for this really helping me understand more about autism

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  2. As you mention a particular diagnosis does not mean that every individual with that diagnosis presents in the same way :- signs, symptoms. There is variety. That's why peer support can be so helpful and supportive.

    Rachel Craig

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  3. Emotions :- as there is so much to deal with no wonder Emotions vary. Likely that Parents / Carers are trying to deal with everything and child is at centre of Care. Addressing child's needs and trying to ensure that the child / children / family have some Qualityof Life. Tiring / Exhausting situation to be in.

    Maybe some families need some Help in the Home ( Home Help).

    Rachel Craig

    ReplyDelete